Six-year-old has a hole in her heart, a diseased and back to front liver, 2 left lungs and stomach on the wrong side. Bethany was also born with 5 spleens
Six-year-old has a hole in her heart, a diseased and back to front liver, 2 left lungs and stomach on the wrong side. Bethany was also born with 5 spleens
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Bethany Jordan (6) was born with many of her organs back to front, but amazed doctors who had warned her parents, Lisa (37) and Robert (44), there was little chance she would survive birth.
Her problems mean that, while she looks a picture of health, she cannot stand up to some of the normal rigours and strains of an average child.
Bethany sufferers from Ivemark Syndrome, an extremely rare genetic disorder, characterised by a poorly-formed cardiovascular system and organs in the wrong place.
Strangely, when she exercises too much, her heart can be seen beating through her back. There are so few sufferers that very little is known about the condition or what could be its cause.
Her mother Lisa said, "When she was born the doctors said her insides were like a jigsaw. It has been a bit of a nightmare but she is my star and I love her the way she is I always will."
Before Bethany was born, doctors discovered her jumbled-up insides following routine pregnancy scans.
Tests showed her brain was normal and Lisa chose to go ahead with the birth, despite the odds being stacked against her.
Dr Patrick McKiernan, who is Bethany's liver consultant said, "She is doing very well despite all her problems, I think she's a very tough little girl."
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