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Rare Disease Day 2026: 5 lesser-known facts

Nascimento Pinto

Mid-Day
Lifestyle
By Nascimento Pinto
Published Feb 16, 2026

Rare Disease Day

Every year, February 28 is observed as Rare Disease Day 2026 to raise awareness for patients, families and caregivers around the world affected by rare diseases

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Theme for 2026

The theme for 2026 is `Moving Forward` to collaborate with patients and their communities to help with the development of medical need for those who are in need

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Origin

The day was established by EURODRIS - Rare Diseases Europe, and was set to be on February 29, which is a rare date, to signify the rarity of diseases

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In India, rare diseases affect at least 70 million people, and the diseases include 7,000 - 8,000 conditions, for which treatment is challenging

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Some of the rare diseases in India include Haemophilia, Sickle-cell Anaemia, Thalassemia, among others

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