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In Photos: Arvind Kejriwal visits family of boy suffering from rare genetic disease

Updated On: 13 September, 2023 12:43 PM IST | ronak mastakar

Delhi Chief Minister Arvind Kejriwal on Tuesday met 18-month-old toddler Kanav, who is suffering from a rare genetic disease, at his house in Najafgarh (Pics/PTI and Twitter)

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The boy's family members said they have been able to raise Rs 10.5 crore for his treatment

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The boy's family members said they have been able to raise Rs 10.5 crore for his treatment

CM Kejriwal said in the country there are only nine such cases of the genetic disorder that the boy is suffering from

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CM Kejriwal said in the country there are only nine such cases of the genetic disorder that the boy is suffering from

"Kanav was born with a genetic disorder, of which there are only 9 known cases in the country. After tests, it was found that an injection from the US, worth Rs 17.5 crores, can cure this disease. Kanav's parents contacted AAP MP Sanjiv Arora, who started a crowdfunding drive to raise the required funds. Rs 10.5 crores were raised through the crowdfunding effort and the drug was brought from the US. After treatment, Kanav's situation has shown some improvement," Kejriwal told reporters after visiting the boy's home

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"Kanav was born with a genetic disorder, of which there are only 9 known cases in the country. After tests, it was found that an injection from the US, worth Rs 17.5 crores, can cure this disease. Kanav's parents contacted AAP MP Sanjiv Arora, who started a crowdfunding drive to raise the required funds. Rs 10.5 crores were raised through the crowdfunding effort and the drug was brought from the US. After treatment, Kanav's situation has shown some improvement," Kejriwal told reporters after visiting the boy's home

The CM thanked those who donated money for the boy's treatment

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The CM thanked those who donated money for the boy's treatment

"I want to thank all those who donated money, including some celebrities and MPs. I also want to thank the US-based drug manufacturer for agreeing to sell the medicine for Rs 10.5 crores," Kejriwal said

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"I want to thank all those who donated money, including some celebrities and MPs. I also want to thank the US-based drug manufacturer for agreeing to sell the medicine for Rs 10.5 crores," Kejriwal said

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