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Parents of baby suffering from rare disorder seek help from Maha govt

As baby suffering from rare disorder whose treatment costs Rs 16 crore enters critical stage, parents and experts urge state to help

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Teera's parents Mihir and Priyanka Kamat have learnt to give her nebulization and chest therapy at home

Teera's parents Mihir and Priyanka Kamat have learnt to give her nebulization and chest therapy at home

The condition of baby Teera Kamat, who was diagnosed as a Spinal Muscular Atrophy (SMA) type 1 child, has worsened. mid-day had reported about her on December 11, in 'Baby with genetic disorder needs Rs 16 crore therapy to live.' On December 14 she had to be rushed to the emergency room for a lifesaving procedure, as she was choking. Her father Mihir has appealed to the government to work with pharma and insurance companies to make lifesaving drugs for the ailment available in reasonable time at affordable costs.

Teera urgently needs the imported gene therapy
Teera urgently needs the imported gene therapy

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