The upcoming second birthday of Shivraj Daware, who hails from Nashik in Maharashtra, will be very special for his parents who claimed that the toddler, suffering from a rare genetic disorder, has become the first such patient from India to be given a Rs 16 crore life-saving injection by a US firm for free after winning a lucky draw.

Shivraj, born on August 8, 2019, is suffering from Spinal Muscular Atrophy (SMA), a rare genetic disorder.