Rare diseases, which are often referred to as orphan diseases, are estimated to have impacted 72-96 million people in India. The Indian government has now put a National Rare Disease Policy in place and Rs 100 crore funds have been allocated towards genetic disorders.

Under the policy, the Central government will contribute 60 percent towards spending on treatment, while state governments will have to bear the remaining 40 percent of the cost. The government's effort to improve diagnosis and bring better treatment and care to patients is already in progress, building on existing capabilities.