In a remarkable medical feat, a team of specialists led by Dr Mazda Turel, neurosurgeon at Wockhardt Hospital and ENT Specialist Dr Nipah, achieved a ground-breaking success in treating a highly unusual case of sinonasal malignancy. This extraordinary case, which involved a 30-year-old male patient Mr Sachin Kesharwani, showcased the power of collaboration and innovation in modern medicine. The patient initially presented with persistent headaches, nosebleeds, and bulging eyes—a distressing combination of symptoms that signalled a severe underlying condition. An MRI revealed a tumour nestled within the nasal cavity, eroding the base of the skull and infiltrating the brain, leading to the displacement of orbital structures and causing the patient's eyes to protrude. Dr. Turel and his multidisciplinary team, including ENT specialist Dr. Nipah, embarked on a comprehensive treatment strategy. The procedure was complex and extensive, requiring meticulous planning and execution. Dr. Nipah skillfully excised the tumor from the nasal cavity, while Dr. Turel performed a delicate cranial surgery to remove the tumor extension into the brain. Further mentioning the details of the surgery, Dr Turel said, “One of the most critical aspects of the surgery was the meticulous repair of the skull base. We utilised a combination of autologous tissue from the patient's thigh, along with synthetic materials, to seal the defect and prevent cerebrospinal fluid leakage—a potential complication that could lead to severe infections.” However, on the success of this critical surgery, an elated Turel mentioned, “Following the successful surgery, the patient experienced a remarkable recovery. His debilitating headaches subsided, his vision improved, and the position of his eyes returned to normal, marking a significant milestone in his journey to recovery.” However, the joy of this success was tempered by the biopsy results, which revealed the tumor to be a highly malignant sinonasal carcinoma. Despite this setback, the patient's resilience and the unwavering commitment of the medical team remained steadfast. The subsequent course of treatment involved a rigorous regimen of chemotherapy and radiation therapy, aimed at targeting any remaining cancer cells and preventing recurrence. The patient endured numerous sessions of therapy, demonstrating immense courage and determination throughout his ordeal. Dr. Turel emphasized the rarity and complexity of this case, underscoring the unique challenges posed by the intricate connection between the nasal cavity and the brain. Despite the inherent risks, the successful outcome serves as a testament to the expertise and innovation within the medical community. This extraordinary case exemplifies the transformative potential of modern healthcare, where collaboration, cutting-edge technology, and unwavering determination converge to defy the odds and restore hope to those facing life-threatening illnesses.
11 May,2024 01:09 PM IST | Mumbai | mid-day online correspondent
Mumbai-based nurse Rashmi Sawant has been a nurse for 18 years now and has grown immensely in this time. However, she has seen that people still have misconceptions about the job. “In India, people think nursing is deemed as a low-level job,” she expresses, continuing, “I think people don’t understand the job hierarchy for nurses in India. People only think that we are a nurse, they don’t know we are registered nurses that also have different administrative positions.” If only they knew better, Sawant says, they would know it is a huge misconception because if you are consistent and credible, then there is a huge growth in the job. Every year, International Nurses Day is observed on May 12 around the world to mark the contributions that nurses make to society. While doctors are hailed for their medical genius, the contribution of nurses may often be relegated to the shadows of the hospital corridors. However, times are changing and one of the biggest examples in the recent past has been that of the Covid-19 pandemic. Even though all nurses dealt with patients, their families who were coming to terms with their death or sickness on a daily basis took out their frustration on them. At such times, nurses put on a brave front and do their best to give them hope and continue to do so even today and Sawant is only one of them. Need for more awarenessIncidentally, Sawant’s sister inspired her to become a nurse. She explains, “When I saw her studying and working, I instantly thought I could fit into this profession. She had no ideals and was the first one in the family. The main thing about being a nurse is growth. I joined as a staff nurse, and today I am a deputy chief nursing officer after 10 years.” It hasn’t always been smooth sailing because the 44-year-old says every position had its own challenges but that helped her build her professional efficacy over the years. “It is refreshing to have a profession that is female dominated,” she says while adding that there is a confidence among patients that female nurses are more efficient. “How people treat nurses depends on how you are,” Sawant adds. Even as she has reached a leadership role today, the Mumbaikar says there are many challenges that nurses face daily but not many people know about it. She explains, “The challenges are the emotional burden that we get while dealing with the patients, relatives, senior doctors and our seniors. It takes a lot to be calm and patient and go on. We have to always maintain a smile and show the confidence that everything is fine.” It came out most during the pandemic and it got really stressful too. “People were really scared to talk to each other. We nurses had to move the fear aside to help the people and make them recover from serious conditions. We have played a role in that and been by their bedside 24x7 because people didn’t want to come to the hospital,” adds the deputy chief at Gleneagles Hospital Mumbai, where she has been working for the last eight years.As more and more films and web series depict nurses as a part of the story, Sawant says she has seen them but is unhappy with the way they are depicted. “Nursing is a very advanced profession. We are into continuous training, education, audits, research – so many things. We have only been shown bedside, listening to the doctors and relatives. There needs to be more research in depicting them,” says the Mumbaikar. With several protests happening in the city and country from time to time, she believes nurses should be paid well monetarily, treated well and their talents need to be recognised.Also Read: Raj Kapoor, Lata Mangeshkar, Pandit Ravi Shankar: Mumbai's Gaylord reopens but carries a legacy with old-world charm and foodMaking a difference in people’s livesElsewhere in Mumbai, Dr Elizabeth Joseph, chief of nursing at Wockhardt Hospitals Mumbai Central, says even though dealing with patients is their daily job and may often be challenging, it is important for nurses to empathise with their patients, understand their needs, and provide comfort in times of vulnerability. “While the journey may be challenging, the rewards of touching lives and making a difference every day make it all worthwhile,” shares Joseph, who has been a nurse for three decades now. It has changed a lot from the time she first started out thirty years ago. “My journey in nursing began with a subtle nudge from a friend who had already embarked on this path. Back then, career choices might not have been as clear-cut as they are today. However, fate led me to pursue nursing, and I found myself enrolled at SNDT, one of the most esteemed universities for aspiring nurses. While I didn't initially feel a profound calling towards this profession, stepping into it ignited a flame of passion within me.” Once she got into the thick of things during her days as a nursing student, she couldn’t tell night and day. She reminisces, “My days were spent in the halls of the bustling municipal and general hospitals (in Mumbai), where the shortage of nurses was palpable. The workload was staggering, leaving little time for doctors and nurses to connect with patients on a personal level. Yet, it was during these clinical postings that I discovered the essence of nursing — the ability to make a difference in someone's life every single day. Whether it was through small gestures of kindness or attentive care, I realised the profound impact nurses have on their patients' well-being.” Even though nursing faces many different kinds of challenges that go beyond dealing with patients like attrition, which Joseph says has become a prominent issue, there is work to be done. One of the most important issues is ensuring patient safety amidst staffing shortages, which requires coordination and dedication behind the scenes. “From obtaining doctor's orders to coordinating medication delivery, every aspect of patient care demands meticulous attention to detail. It's crucial for people to recognise that while nurses are the primary caregivers directly interacting with patients, they also play a vital role in coordinating with various departments behind the scenes.” With nurses emerging as the frontline heroes during the pandemic, showcasing their crucial role in healthcare, the 58-year-old says there has been a heightened visibility that has led to a growing appreciation for their dedication and expertise. “As societal norms evolve towards greater equality, the nursing profession is rightfully gaining respect and recognition. However, there are still areas where progress is needed to ensure equitable opportunities and support for nurses,” she adds. Also Read: Why this Mumbaikar turned into a human indicator at Dadar stationChanging role of nurses todayOne of the easiest ways to do this, believes Lissymol Saji, nursing head at Wockhardt Hospitals Mira Road, is by raising awareness about the vital role of nurses in healthcare. In fact, it was what made her want to become a nurse. “I wanted to help people and make a difference in their lives. The best thing about being a nurse is the opportunity to provide compassionate care, and support to patients during challenging times,” she shares. Over the years, she has seen many different kinds of misconceptions play out in the hospital and outside of it. She explains, “One common misconception about nursing is that it’s all about following a doctor’s order. However, the reality is that nurses play a crucial role in patient care, often making independent decisions and advocating for their patients.” Even as they deal with these misconceptions, Saji agrees with Sawant as she says apart from emotional strain, nurses also face psychological strain as they regularly witness suffering,trauma and death, which disturb their mental state too like anybody else. “Nurses often work long shifts and sometimes without adequate breaks which can lead to physical exhaustion,” she adds. This may often escalate when dealing with family and friends of people in the hospital but her experience and training kicks in. “When dealing with stressed or angry family members, it’s important to remain calm, and empathetic, communicate effectively and listen to their concerns, provide information, and involve them in the care process by eliminating tension and building trust,” she explains. Just like Saji even Dr Sneha Vaidya, regional director-nursing services, Western Region Apollo Hospitals, believes that people think nurses are just assistants to doctors but they are so much more than that as they don't just do basic tasks anymore and in fact are from a growing pool of specialised nurses who provide advanced care to patients. With Vaidya, who has over 26 years of experience, saying the challenging part of being a nurse is also maintaining a work-life balance. “We need to work in shifts and manage family at the same time and that becomes stressful sometimes,” she explains. Interestingly, the nurse has a big role model in her life. “My mother inspired me to be a nurse who was one of the pioneering nurses in her times enduring compassion and care,which eventually developed the confidence in me to take up this arduous role. The best thing about being a nurse is you can touch millions of lives,” she explains. In all this time, Vaidya says things have changed a lot and nurses have gained a lot of respect among the other medical professionals. However, there is still more room for improvement. “The fact that a nurse is more than an assistant to the doctor needs to be furthermore accepted in some of the pockets in the country especially out of tier 1 and 2 cities,” she concludes.
11 May,2024 01:04 PM IST | Mumbai | Nascimento PintoFemale sex hormone oestrogen and the X chromosome play a significant role in making women more vulnerable to the autoimmune disorder lupus’, said experts on World Lupus Day on Friday. World Lupus Day is observed every year on May 10 to raise awareness of the life-changing autoimmune disease, in which the body attacks its organs by producing certain substances called antibodies. Symptoms predominantly include fever, fatigue, malar rashes, multiple large and small joint pains, breathlessness, sometimes difficulty in swallowing, and chest pain. The condition, also known as Systemic Lupus Erythematosus (SLE), affects millions of individuals worldwide. In India, 3.2 cases of SLE are documented per 100,000 people. However, globally women in the reproductive age range disproportionately account for up to 90 per cent of cases of the SLE. Also Read: EXCLUSIVE: ‘Longer the life of a food product, the sooner your expiry date: Revant Himatsingka aka Food Pharmer Despite recent progress in the understanding of lupus, the striking female-to-male ratio of disease incidence remains largely unexplained. “But some studies point out that sex hormones play a major role in causing genetically predisposed women more vulnerable to lupus; oestrogen specifically is likely to contribute more to the development of lupus,” Dr Anu Daber, Sr Consultant Rheumatology, Paras Health Gurugram, told IANS. Research also highlights the connection between X chromosomes in women and the development of lupus, meaning in females, having two active X chromosomes would overwhelm the cellular machinery. “To prevent this, one X chromosome is inactivated in each developing cell. This process, called X-chromosome inactivation, might influence how the immune system learns to identify threats. Variations in how efficiently this inactivation occurs could potentially lead the immune system to mistakenly target the body's own tissues, contributing to autoimmune diseases like lupus,” Dr Anu explained. Dr. Prasad Kuvalekar, Consultant Physician of Internal Medicine, DPU Super Specialty Hospital, Pimpri, Pune noted that lupus affects the skin, kidney, heart, brain joints, lungs, and blood vessels. Also Read: How social media addiction has given rise to popcorn brain in young adults “There are no vaccines available to prevent lupus as it's an autoimmune condition and most of the time it's genetic. There are also no preceding signs to identify its early onset,” Dr Prasad told IANS, noting that malar rashes can, to some extent, be identified as an early sign. Further, people with lupus are more susceptible to infection, cancer, and bone tissue death, since the disease and its therapies can impair the immune system. Lupus also raises complications in pregnancy problems. Dr. Prasad said that women who have lupus are more likely to miscarry. “Lupus raises the risk of high blood pressure during pregnancy and premature birth. To lessen the chance of severe consequences, doctors frequently advise deferring pregnancy until your disease has been controlled for at least six months,” he added. Physical activity may be key to managing the autoimmune disorder, and the associated problems as well as ease mental stress. “Women can include low-impact exercises in their routine like yoga, tai chi, pilates, walking, and swimming. Regular exercise has been shown to have a positive impact on mental health, reducing the risk of depression and anxiety, which are common comorbidities among individuals with SLE,” Dr Anu said. Also Read: Can this respiratory disease be cured with the latest medical advancements? This story has been sourced from a third party syndicated feed, agencies. Mid-day accepts no responsibility or liability for its dependability, trustworthiness, reliability and data of the text. Mid-day management/mid-day.com reserves the sole right to alter, delete or remove (without notice) the content in its absolute discretion for any reason whatsoever.
10 May,2024 03:07 PM IST | New Delhi | IANSInflammatory Bowel Disease (IBD) causes inflammation and irritation in the digestive system. If you have been diagnosed with inflammatory bowel disease (IBD), Dr Meghraj Ingle, director and senior consultant gastroenterology, Gleneagles Hospital, Parel, Mumbai shares effective tips to manage this condition and improve your quality of life. IBD includes two main types: Crohn’s disease and ulcerative colitis. Crohn's disease can affect any part of the digestive tract, right from the mouth to the anus, and can further cause inflammation and swelling in the particular affected area. Ulcerative colitis specifically affects the inner lining of the colon (large intestine) and rectum, which leads to inflammation and ulcers in the affected area. Genetics, family history, bacteria, viruses, smoking, infections, and antibiotics can lead to this condition. Symptoms of IBD include diarrhoea, fatigue, blood in your stool, and reduced appetite. These symptoms can vary from person to person depending on the severity of the inflammation. This condition can be managed by medication and surgery. Here are some tips to take care of IBD Avoid sugary products/drinks: It is advised to lower the consumption of sugary products like soda, sweets, chocolates, and juices as they can trigger your digestive system and gut health. Instead, opt for healthy options like water, coconut juice, and vegetable broth for health benefits. Follow a balanced diet: Eat a nutritious diet consisting of fresh fruits, vegetables, pulses, lentils, and legumes. Also, ensure your body gets enough proteins and fibres including healthy fats like omega-3 fatty acids. Take the help of an expert who will guide you regarding what to eat and avoid. Exercise regularly: It is important to exercise daily and stay fit to manage the symptoms of IBD such as bloating and fatigue. You can exercise for at least five days a week for 45 minutes. Do activities such as running, cycling, swimming, Pilates, gymming, or Zumba. Quit smoking: If you smoke, it is essential to quit smoking to manage IBD. Smoking not only increases the risk of developing IBD but also worsens the symptoms of this condition. Stop consuming alcohol and recreational drugs: Did you know beer can induce gas? Shockingly, alcohol causes bleeding in the gut when one has IBD. Furthermore, alcohol irritates and inflames its lining. It is better to avoid alcohol and improve your condition. De-stress by doing yoga and meditation: Stress can also trigger IBD symptoms. It is essential to opt for yoga or meditation to relax and calm down. Keep track of your symptoms and food triggers: Recording symptoms and food triggers can help manage inflammation. You will be able to understand which food can trigger the symptoms. Hence, one will be able to seek the right kind of guidance from the doctor. Disclaimer: This information does not replace professional medical advice. Consult a qualified specialist or your physician for personalised guidance.
10 May,2024 01:10 PM IST | Mumbai | mid-day online correspondentLove to binge on packaged baked goods and snacks, fizzy drinks, sugary cereals, and ready-to-eat or heat foods? Beware, it can cut short your lifespan and raise the risk of early death, according to a 30-year-long study published in the journal The BMJ on Thursday. The risk is because ultra-processed foods often contain colours, emulsifiers, flavours, and other additives and are typically high in energy, added sugar, saturated fat, and salt, but lack vitamins and fibre -- leading to poor health, and raising the risk of obesity, diabetes, and hypertension, which can further raise the risk of cardiovascular diseases and cancer. For the study, an international team of researchers including from the US, Brazil, and China, tracked the long-term health of 74,563 female registered nurses from 11 US states between 1984 and 2018; and 39,501 male health professionals from all 50 US states from 1986 to 2018 with no history of cancer, cardiovascular diseases, or diabetes. Also Read: EXCLUSIVE: ‘Longer the life of a food product, the sooner your expiry date: Revant Himatsingka aka Food Pharmer The results revealed that eating an average of 7 servings per day of ultra-processed foods caused a 4 per cent higher risk of total deaths and a 9 per cent higher risk of other deaths, including an 8 per cent higher risk of neurodegenerative deaths. The rate of death from any cause among participants in this group was 1,536 per 100,000 person-years. Further, eating meat, poultry, and seafood-based ready-to-eat products showed the strongest risk of early death, followed by sugar-sweetened and artificially sweetened beverages, dairy-based desserts, and ultra-processed breakfast food. Even though this is an observational study, so no firm conclusions can be drawn about cause and effect, “the findings provide support for limiting consumption of certain types of ultra-processed food for long-term health,” said the researchers. “Future studies are warranted to improve the classification of ultra-processed foods and confirm our findings in other populations,” they added. This story has been sourced from a third party syndicated feed, agencies. Mid-day accepts no responsibility or liability for its dependability, trustworthiness, reliability and data of the text. Mid-day management/mid-day.com reserves the sole right to alter, delete or remove (without notice) the content in its absolute discretion for any reason whatsoever.
09 May,2024 05:50 PM IST | New Delhi | IANSThe conjoined twins Riddhi-Siddhi who were once abandoned by their parents have successfully undergone a separation surgery at Wadia Hospital, Mumbai. Not only this, the duo has now found a loving home at Bai Jerbai Wadia Hospital for Children in Mumbai. Separating conjoined twins, while often life-changing and liberating, can present a myriad of complex challenges. Physically, the separation surgery itself carries inherent risks, including potential damage to shared organs or blood vessels, leading to hemorrhage or organ dysfunction. Post-operatively, complications such as infection, wound healing issues and fluid imbalances can arise, requiring meticulous monitoring and management. Additionally, both twins may experience psychological and emotional difficulties as they adapt to individual identities and lifestyles, often requiring extensive support from medical professionals and mental health specialists. Long-term outcomes may vary, however the duo has recovered with no symptoms of discomfort, informs the hospital staff. On their 12th birthday, the twins were adorned in elegant gowns and celebrated their big day with a specially crafted colourful rainbow three-tier cake in the hospital premise. Also Read: Why this Mumbaikar turned into a human indicator at Dadar station Akin to being orphans, Riddhi-Siddhi are now under the care of Wadia Hospital, where they receive not only medical attention but also education and support. The hospital's compassionate act of taking on the responsibility for these twins has been a shining example of kindness and humanity, as they continue to nurture the girls toward achieving their developmental milestones and preparing them for a bright future ahead. The gala birthday bash was organised by Wadia Hospital, wherein pediatric patients, their family members, doctors, nurses and other staff in the hospital greeted the twins with presents and chocolates. The twins were elated and danced enthusiastically during the celebrations which included fun-filled activities, games, and musical chairs followed by a cake-cutting ceremony. Dr Minnie Bodhanwala, CEO Wadia Hospital remarks: “Riddhi-Siddhi's 12th birthday is a sign of how the two young girls are now reaching developmental goals for their age. Over the past 12 years, Wadia Hospital has played a crucial role in caring for Riddhi and Siddhi, providing them with the necessary support and resources to thrive." She continues, "As they enter this new phase of their lives, the hospital is committed to empowering them to reach their full potential, learn, grow and flourish. As the twins continue on their path toward independence and self-discovery, the hospital stands as a pillar of support, ready to empower them every step of the way. Miracle baby: Woman weighing 160-kg gives birth to a healthy baby after 14 years of marriage
09 May,2024 02:20 PM IST | Mumbai | Ainie Rizvi“Madhi, Badmash bachcha! Come and say hi,” hollers the Parel-based mother and autism activist – Mugdha Kalra at her son. After minor resistance, her son arrives and waves at this writer through the computer screen on a video call. While he avoided making eye contact, his greeting was heartfelt and topped with warmth. Madhav (14), son of Mugdha was diagnosed as being on the autism spectrum when he was 4. While Mugdha has spoken extensively about bringing up a neuro-diverse child, she is now onto raising awareness about the importance of building a community of parents who can support each other. To help autistic children, she has co-founded Not That Different – a child-led movement that focuses on inclusion and understanding neurodiversity. The project is the outcome of a collaboration between Mugdha and Nidhi Mishra, founder of Bookosmia. It comprises a comic strip, in which Bookosmia’s 12-year-old persona Sara introduces her readers to her new friend, Madhav, a child on the autism spectrum. Through Sara’s journey of meeting and accepting someone a little different, one can understand what being neuro-diverse entails. “Autism is a developmental difference that influences a person’s worldview and their social engagements. However, what one fails to realise is how society’s understanding and acceptance can positively impact the lives of autistic children and their families,” Mugdha shares with Midday. Also Read: Health cover denial sparks mother's advocacy for autistic son Systemic issues that affect the growth of autistic children“The government does not prioritise the creation of specialised policies for individuals with invisible disabilities, indicating a lack of recognition for their needs and challenges," opines Mugdha. Over a period of time, she has set 4 goals that she is primarily tackling to help the development of neurodivergent children: Curriculum crisis: In India, there is currently an absence of a tailored curriculum specifically designed for functional academics catering to children with special needs. This gap continues as there are no educational reforms to enforce the diverse learning requirements of these children. Lack of awareness on therapy: Is there a system by which the government is giving any kind of license to practice to the number of people who have now mushroomed in the name of therapy – questions Mugdha, highlighting the grave issue of self-anointed therapists that are emerging. How does one get to know which therapy center or which professional is qualified to be doing what they are doing? No health cover: Autism and Down's Syndrome fall under the category of intellectual disabilities as per the Rights of Persons with Disabilities Act, 2016. This Act obligates the central and state governments to design schemes ensuring inclusive insurance coverage for persons with disabilities – however, insurance companies breach these regulations by refusing coverage or denying claims of individuals living with neurodivergence. Disability certification: It requires 14 sittings spanning over 3 months to obtain the Unique Disability ID (UDID) Card. Usually, these sessions get extended leaving parent and their special-needs children harassed by the inefficient ways they are carried (elaborated later in this article). Data deficit for policy formationRegrettably, Mugdha sees little hope for progress, particularly because this disability is invisible, making it less likely to receive attention. Despite the recent efforts of the National Health Scheme to conduct a survey, it appears that individuals with invisible disabilities may not be adequately accounted for in the data collection process. “Any matters concerning invisible disabilities or disabilities in general remain overlooked. Without a specialised census focused on data collection for individuals on the spectrum or those with invisible disabilities, they'll never be important enough for the government. So why do you see today blind association or the blinds in the country have the most solid presence?” asks the autism activist Mugdha. Indeed, the visibility of blindness makes it impossible to conceal, and since individuals who are blind typically do not have cognitive impairments and are functional, they tend to receive the most support. Similarly, those who use wheelchairs often receive significant assistance. However, individuals with invisible disabilities face stigma and taboo, which complicates their access to support and understanding. The issue primarily lies in the lack of acceptance, remarks Mugdha. “Parents often hesitate to openly acknowledge that their child has an invisible disability. Consequently, accurate statistics on the prevalence of these disabilities are lacking. Without this data, the government may perceive this demographic as a small and insignificant group.” When disabilities are approached collectively, progress tends to be limited. However, when specific conditions like autism are individually addressed, significant strides can be made. It's essential to recognise the prevalence of various special needs children across the country and have accurate data to inform decisions regarding school placements and government support. Without precise numbers, appropriate interventions become challenging to implement. This highlights a significant gap in addressing discrimination, particularly between visible and invisible disabilities.Also Read: Catch autism early: Key steps for early intervention Obtaining UDID remains a complex taskDespite the government setting in place certain policies to address the needs of autistic children, it takes a lot of time and harassment to get the benefit of those policies, shares Mugdha. For example, obtaining her son's disability certification required 14 sessions spanning over three and a half months. While some may consider this relatively quick, it's worth noting that it typically involves a longer process. “Now, just imagine taking your specially-abled child to a government hospital, which may not have public bathrooms, which, in the same room is also, evaluating your son along with inmates of your local jail. You are made to wait in lines for two to three hours for 14 different sessions and you are not even based in Bombay,” Mugdha sheds light on the plight of parents and children who have to come from far off to obtain a UDID card. Also Read: How bureaucracy is failing the applicants of Unique Disability ID While the disability certificate indeed provides benefits such as access to writers or readers during examinations, additional time and permission to use a calculator, obtaining it is far from straightforward in our country. Mugdha and Madhav’s journeyWhen Madhav was diagnosed with autism, Mugdha was completely unaware of the developmental condition. It took her about three to four years to grasp the concept of autism and truly understand the needs of her differently-abled son. “Our journey began in Bangalore, which proved to be excellent in terms of therapy options. Following this, we relocated to Bombay, where his academic intervention began.” While Madhav began to make progress in academics, it was albeit slow. Regarding schools, Mugdha has exclusively turned to special needs schools to support her child, as mainstream schools, even those claiming to be inclusive or integrated, often lack the resources to adequately meet the needs of autistic children. Instead, the family embarked on a journey focused on special needs education and enrolled him in specialised schools. Now, at the age of 14, Madhav continues to attend a special needs school and is passionate about fitness and is progressing at his own pace, focusing on functional academics. Mugdha’s career as a broadcast journalist has been instrumental in her efforts to create acceptance around neurodivergent children. Apart from raising awareness, Mugdha actively engages with parents of children with intellectual disabilities, equipping them with valuable tools to support their special needs. On raising a child with a developmental difference, Mugdha opines that the initial difficulties are always there till you do not fully accept the fact that you have a differently abled child who perhaps is not neurotypical. Once that acceptance takes shape, you are ready to embrace the new life as new avenues open up. “I've been very open with my friends and my family and my neighbours and my collegiate society about the fact that my son is autistic and that he has different needs and that he is going to occupy his deserving space in the world,” says Mugdha who is indifferent to the opinions hurled at her. She concludes by saying: In India, everyone will have an opinion on your parenting style. Everyone will have an opinion on why in the first place you have a special needs child. So the only way to deal with it is to accept that your child is autistic and raise them by prioritising their needs and at all times being prepared to give back answers when tough questions are put to you and fighting for your child's rights! Also Read: Our expert answers some common questions about Autism
09 May,2024 01:51 PM IST | Mumbai | Ainie Rizvi
Geetha VM’s son Om, was 10 when he was diagnosed with pneumonia in February 2020. To avail medical treatment, the Bengaluru boy was hospitalised and his family was promised insurance coverage by Care Health (formerly Religare) Insurance company. However, later they were denied health cover on account of Om’s autistic condition, which the parents were not aware and hence did not reveal at the time of purchasing the policy. Shortly after Om was admitted, a representative from the insurance company arrived at the hospital, demanding Geetha sign a declaration that Om has Autism Spectrum Disorder (ASD) and specify the age at which he was diagnosed. In an interaction with Midday, Geetha tells us: “When we bought the insurance policy, Om had developmental delay, and autism wasn't diagnosed by the government doctors. The health experts claimed that he only had developmental delays with academic and learning difficulties. Moreover, when you buy insurance, the agents usually check for underlying conditions like thyroid, cancer, and those kinds of pre-existing illnesses.” She continues, “In our case, they never highlighted or checked with us whether Om had intellectual disabilities or any such condition within the family. So, we took it for granted and didn't read all the rules.” What followed was an email from the insurance company stating that Om's policy 'was subject to cancellation due to non-disclosure of material facts regarding pre-existing ailments.’ Upon learning this, Geetha and her husband were taken aback. They didn’t expect that the medical cover for pneumonia would be declined owing to his underlying developmental delay/autistic condition which was not revealed. After several emails pointing out that Om’s ASD had no bearing on his physical illness, the family was met with disappointment. They had to pay all the treatment bills with the help of Om's husband's company corporate insurance. While Geetha believes it’s her fault for not disclosing that Om is under ASD, the question remains – why are insurance companies denying health coverage for people with intellectual and developmental disabilities? Also Read: A guide to navigating social relationships for individuals with bipolar disorder What does the law state? Autism and Down's Syndrome fall under the category of intellectual disabilities as per the Rights of Persons with Disabilities Act, 2016. This Act obligates the central and state governments to design schemes ensuring inclusive insurance coverage for persons with disabilities. The Niramaya Health Insurance Scheme, under the National Trust Act, 1999, stands as the only government program offering comprehensive health cover for individuals with intellectual disabilities. This scheme grants an annual reimbursement-only insurance cover of up to Rs 1 lakh, which includes hospitalisation, outpatient department fees, ongoing therapies and transportation costs for those with valid disability certificates. However, as per Geetha, insurance companies breach these regulations by refusing coverage or denying claims of individuals living with these conditions. “I did my research and spoke to senior parents of autistic children. They told me that companies don’t provide cover when you mention autism. You have to be secretive and discreet to avail health insurance for children diagnosed with autism,” shares Geetha. Her anger is in place. When the Insurance Regulatory and Development Authority of India (IRDAI) has clearly stated that intellectual disabilities, including autism, down’s syndrome and other intellectual disabilities or neurodivergence should be mandatorily covered, why are insurance companies denying the claim? “There may not be enough data or clinical experience of long-term risks to design the product appropriately,” wrote a senior manager of Care Health Insurance to Geetha. The manager insisted that despite IRDAI mandating health cover, we don’t have to give you a policy necessarily. He added, “If we provide a policy but then prevent you from making claims, you could file a lawsuit against us. However, we haven't issued a policy to you, and we're unable to do so.” Though Geetha had, later, provided them with his disability certificate which indicated he has a mild to moderate Autism Spectrum Disorder. Geetha tried her level best to convince the manager. She also suggested that a panel of doctors can speak to the underwriting team stating that autism is not an illness or a disease, but it's more like a a lifelong neurological condition and doesn’t impact the physical condition of a person. To her apathy, the insurance company denied all her requests. Also Read: Bipolar disorder advocates demand action for improved mental health care If Covid-19 can be covered, why not autism? Currently, Geetha is on a mission to expose the inefficiencies of the system. “I've been reaching out to numerous insurance companies, and I've even asked many parents to do the same for research purposes, almost like cold calling. Initially, these companies promise attractive premiums, covering amounts like 1 crore or 50 lakh for the entire family. They send us detailed emails with all the information. However, as soon as we disclose that only our son has Autism Spectrum Disorder, things take a different turn.” “The representatives handling our inquiries often lack sufficient knowledge. They quickly classify it as an "Intellectual Disability" and state that it cannot be covered. When we press them for more information, they struggle to provide satisfactory answers due to their limited understanding. Even when we escalate the issue to their managers, we're met with a similar response. They claim that their underwriters are still researching and trying to figure things out.” When the unheard viral illness, Covid-19 made an outbreak, insurance companies saw it as a lucrative opportunity to devise timely products. Despite the ambiguity and rapidly evolving situation, insurance agents promptly decided to include Covid-19 coverage overnight without knowing if Covid-related expenses would amount to 1 lakh, 2 lakh, or even 6 lakh. Geetha’s frustration stems from this swift action to cover Covid-19, an unfamiliar and terrifying phenomenon. While today Covid-19 is well understood and accepted as a part of our lives, back then, it was an unprecedented threat affecting the entire globe. Nevertheless, insurance companies readily embraced the need to cover it, recognising its importance for the well-being of the entire population. No space for disability Here is a minority group, persistently seeking answers for years, yet receiving no response. Is it because of prejudice towards individuals with disabilities or an indifferent mindset? Disabled children don't have the power to vote—does their absence from the voting demographic render their needs insignificant? However, Geetha hesitates to solely blame politicians, as the government, through the IRDAI, has unequivocally directed insurance companies to provide coverage. Although there are a few insurance companies, like Star Health Insurance, that offer coverage, the amount they provide is paltry—just Rs 3 lakh. This amount proves insufficient, especially when considering medical expenses for conditions like pneumonia, which necessitates hospitalisation for a mere 48 hours. Even for such a short duration, the medical bill can range from Rs 40,000 to Rs 60,000, considering inflated medical costs and other expenses. This inadequacy is glaringly evident and leaves much to be desired in terms of support for individuals with disabilities. Also Read: Lok Sabha elections 2024: Even in MVA, ticket for a Muslim a distant dream Furthermore, their coverage only extends up to 25 years of age. When Geetha inquired with her health insurance provider about extending coverage for her son, she learnt that they will not cover up beyond the age of 25. However, Care Health Insurance reached out to her with an alternative policy. “At that time, my son was only 12 years old, and I expressed concerns about what would happen if he encountered health issues before reaching 18, even common ailments. To this, they reiterated that coverage would only commence after he turns 18, and even then, it would be limited to Rs 5 lakh. Additionally, they required me to pay a significantly higher premium, almost double the standard rate, for this extended coverage,” Geetha tells Midday. Similarly, there are a few insurance companies—just a handful—that offer very low coverage. Some individuals are forced to pay high premiums for this limited coverage, which is completely unjust. Geetha opines that it's simply not right to exclude a significant portion of the population like this. Take the case of pneumonia, for instance. Anyone can fall ill with pneumonia; it's not something that discriminates based on age or any other factor. What frustrates Geetha even more is that there are insurance covers for things like pet animals, houses and cars, but why not for human beings? Why are insurance companies denying coverage to a significant portion of the population? This discrepancy is concerning and highlights the need for greater inclusivity in insurance coverage. What’s next for Om? People with Autism Spectrum Disorder are normal individuals and citizens of India, deserving of equal rights and access to essential services like health insurance. As a parent and advocate, Geetha is raising her voice to demand inclusivity and justice for our children. Geetha’s resilience knows no bounds. She has taken to social media to raise awareness on the institutional inefficiencies when it comes to health cover for children with special needs. “It has to go to the insurance companies, the IRDA, to the right people for it to click. And it's just been 2-3 days since I started this whole thing, maximum 48 hours.” For Geetha, the goal isn't about going viral and amassing 1000+ views. Even if it's just three views, the content must reach the right target audience, namely the decision-makers within insurance companies. It sheds light on the burning negligence when it comes to covering children with developmental conditions and serves as a stark reminder for the IRDAI to question insurance companies about their failure to adhere to the regulations. To conclude, Geetha adds, “I am appealing to insurance companies and the public alike: my son, along with countless others on the autism spectrum, deserves proper health insurance coverage. We are willing to pay premiums for fair coverage that reflects their needs and ensures their well-being.”
09 May,2024 01:50 PM IST | Mumbai | Ainie RizviAs British-Swedish pharma giant AstraZeneca recalled its Covid-19 vaccine globally, Pune-based Serum Institute of India (SII) on Wednesday said it stopped the manufacturing and supply of additional doses of Covishield in December 2021. AstraZeneca has voluntarily withdrawn the "marketing authorisation" of its Covid vaccine, sold as Covishield in India and Vaxzevria in Europe. In a statement to IANS, an SII spokesperson said that with India achieving high vaccination rates in 2021 and 2022, coupled with the emergence of new mutant variant strains, the demand for previous vaccines diminished significantly. "Consequently, since December 2021, we have stopped the manufacturing and supply of additional doses of Covishield," the spokesperson added. The Serum Institute said that they fully understand the ongoing concerns and "it's crucial to emphasise our commitment to transparency and safety". The company said that from the outset, "we have disclosed all rare to very rare side effects, including Thrombosis with Thrombocytopenia Syndrome, in the packaging insert in 2021". Thrombotic Thrombocytopenic Syndrome (TTS) is a rare side effect that can cause people to have blood clots and a low blood platelet count, linked to at least 81 deaths in the UK as well as hundreds of serious injuries. The SII stressed that despite the challenges faced during the global pandemic, the safety of the vaccine remains paramount. "Regardless of whether it's AstraZeneca's Vaxzervria or our own Covishield, both vaccines have been instrumental in saving millions of lives worldwide. "We commend the collaborative efforts of governments and ministries in facilitating a unified global response to the pandemic," added the Serum Institute. Meanwhile, the British-Swedish multinational pharmaceutical is also being sued by more than 50 alleged victims and grieving relatives in a High Court case in the UK. This story has been sourced from a third party syndicated feed, agencies. Mid-day accepts no responsibility or liability for its dependability, trustworthiness, reliability and data of the text. Mid-day management/mid-day.com reserves the sole right to alter, delete or remove (without notice) the content in its absolute discretion for any reason whatsoever.
08 May,2024 06:27 PM IST | Mumbai | IANSLack of widespread awareness, genetic counselling, and traditional belief systems are some of the major reasons why India has the highest number of thalassemia major patients in the world, said experts here on World Thalassemia Day on Wednesday. World Thalassemia Day is observed every year on May 8 to raise awareness about the disease. The theme this year is 'Empowering Lives, Embracing Progress: Equitable and Accessible Thalassaemia Treatment for All'. Every eighth thalassemia patient in the world lives in India. And yearly about 10,000-20,000 new thalassemia majors are born. "India has the largest number of children with thalassemia major in the world, with around 1-1.5 lakhs of children affected. India's status as the thalassemia capital stems from a complex interplay of factors. Genetic predisposition, consanguineous marriages, and lack of awareness contribute to its prevalence. The rise in India can be attributed to population growth, limited access to screening, and lack of awareness," Sunil Bhat, Director and Clinical Lead - Pediatric Hematology, Oncology and BMT, Narayana Health Network Hospitals, told us. Thalassemia Major is a severe inherited blood disorder, passed from parents to children. The disorder occurs when the body doesn't make enough of a protein called haemoglobin -- an important part of red blood cells -- forcing the need for blood transfusions every fortnight. Also Read: Elderly woman weighing 102 kg undergoes bilateral knee replacement in Noida It is particularly prevalent in populations with a high incidence of cousin marriages and within certain ethnic and geographical groups. "In India, certain communities such as Sindhis, Punjabis, Bhanushali, Kutchi, Marwari, Maratha, Muslim, and Bengalis have a higher prevalence of the gene, which increases the incidence of Thalassemia. The incidence of Thalassemia Minor in this community varies from 8-14 per cent," Vijay Ramanan, Sr. Consultant Clinical Haematologist, Bone Marrow & Stem Cell Transplant, Ruby Hall Clinic, Pune, told IANS. The large population and high birth rate in India also contribute to a greater number of individuals being affected by genetic disorders. "Lack of widespread awareness and education about Thalassemia and genetic counselling among the general public leads to insufficient preventive measures. Prenatal and pre-marital screening for Thalassemia is not uniformly practised across the country," Vijay said. "Ignorance and desire to believe that astrology is more important than science has contributed to an increase in thalassemia minors marrying another thalassemia minor. Such marriages have a 25 per cent chance of getting a thalassemia major child," he added. The doctor lamented that while prenatal diagnosis exists in the country to prevent the birth of such children, "it is not availed by such couples due to religious beliefs or ignorance". Moreover, the availability and accessibility of medical services, including blood transfusions and chelation therapy, can be uneven across urban and rural regions in the country. Importantly, the doctor also pointed out a lack of data. "The rough estimate is that about 4 lakh to 6 lakh children with thalassemia major exist in India. However, the diseases needing transfusions are not usually collected in the data. Distribution of thalassemia major patients across states has not been done due to lack of registry," Vijay said. Comprehensive education on genetic risks, premarital counselling, and widespread screening is essential to address the burden of thalassemia in India, noted the experts. "In addition, promoting voluntary genetic testing national policy from the Government and fostering partnerships between doctors and communities can enhance prevention efforts. Ultimately, proactive measures, such as early diagnosis and timely management, hold the key to alleviating the impact of thalassemia in India," Sunil said. Also Read: Chandigarh doctors help Thalassemia couple deliver baby without the genetic disorder using breakthrough procedure This story has been sourced from a third party syndicated feed, agencies. Mid-day accepts no responsibility or liability for its dependability, trustworthiness, reliability and data of the text. Mid-day management/mid-day.com reserves the sole right to alter, delete or remove (without notice) the content in its absolute discretion for any reason whatsoever
08 May,2024 12:47 PM IST | Mumbai | IANSA 63-year-old woman suffering from severe knee pain and limited mobility due to osteoarthritis has regained hope after a successful bilateral total knee replacement surgery here. The woman Sunita Thakur, weighing approximately 102 kg, was unable to walk due to severe pain in both knees caused by osteoarthritis and bow legs. She had bilateral (meaning in both knees) osteoarthritis, a condition where the cartilage cushioning the knee joint degenerates. "This, combined with a genu varum deformity (bowed legs), caused her significant pain and restricted her movement. In this condition, the knees knock inward when standing with the feet together,” said Dr. Bharat Goswami, Consultant Orthopaedics at Fortis Hospital Greater Noida. The weight of 102 kg posed a significant challenge during the surgery. "Typically, performing knee replacement surgery is challenging due to the poor quality of bone, excess flesh, and weakened bones. This complexity increases the risk of complications such as blood vessel thrombosis (BVT) and fat embolism. Additionally, such patients require specialised care," explained Dr. Goswami Although she experienced some postoperative respiratory difficulties, necessitating a brief hospital stay for observation, she recuperated well. Upon improvement in her condition, she was discharged from the hospital, the doctor said. This story has been sourced from a third party syndicated feed, agencies. Mid-day accepts no responsibility or liability for its dependability, trustworthiness, reliability and data of the text. Mid-day management/mid-day.com reserves the sole right to alter, delete or remove (without notice) the content in its absolute discretion for any reason whatsoever
07 May,2024 10:25 PM IST | Noida | IANSADVERTISEMENT
