“Madhi, Badmash bachcha! Come and say hi,” hollers the Parel-based mother and autism activist – Mugdha Kalra at her son. After minor resistance, her son arrives and waves at this writer through the computer screen on a video call. While he avoided making eye contact, his greeting was heartfelt and topped with warmth. Madhav (14), son of Mugdha was diagnosed as being on the autism spectrum when he was 4. While Mugdha has spoken extensively about bringing up a neuro-diverse child, she is now onto raising awareness about the importance of building a community of parents who can support each other. To help autistic children, she has co-founded Not That Different – a child-led movement that focuses on inclusion and understanding neurodiversity. The project is the outcome of a collaboration between Mugdha and Nidhi Mishra, founder of Bookosmia. It comprises a comic strip, in which Bookosmia’s 12-year-old persona Sara introduces her readers to her new friend, Madhav, a child on the autism spectrum. Through Sara’s journey of meeting and accepting someone a little different, one can understand what being neuro-diverse entails. “Autism is a developmental difference that influences a person’s worldview and their social engagements. However, what one fails to realise is how society’s understanding and acceptance can positively impact the lives of autistic children and their families,” Mugdha shares with Midday. Also Read: Health cover denial sparks mother's advocacy for autistic son Systemic issues that affect the growth of autistic children“The government does not prioritise the creation of specialised policies for individuals with invisible disabilities, indicating a lack of recognition for their needs and challenges," opines Mugdha. Over a period of time, she has set 4 goals that she is primarily tackling to help the development of neurodivergent children: Curriculum crisis: In India, there is currently an absence of a tailored curriculum specifically designed for functional academics catering to children with special needs. This gap continues as there are no educational reforms to enforce the diverse learning requirements of these children. Lack of awareness on therapy: Is there a system by which the government is giving any kind of license to practice to the number of people who have now mushroomed in the name of therapy – questions Mugdha, highlighting the grave issue of self-anointed therapists that are emerging. How does one get to know which therapy center or which professional is qualified to be doing what they are doing? No health cover: Autism and Down's Syndrome fall under the category of intellectual disabilities as per the Rights of Persons with Disabilities Act, 2016. This Act obligates the central and state governments to design schemes ensuring inclusive insurance coverage for persons with disabilities – however, insurance companies breach these regulations by refusing coverage or denying claims of individuals living with neurodivergence. Disability certification: It requires 14 sittings spanning over 3 months to obtain the Unique Disability ID (UDID) Card. Usually, these sessions get extended leaving parent and their special-needs children harassed by the inefficient ways they are carried (elaborated later in this article). Data deficit for policy formationRegrettably, Mugdha sees little hope for progress, particularly because this disability is invisible, making it less likely to receive attention. Despite the recent efforts of the National Health Scheme to conduct a survey, it appears that individuals with invisible disabilities may not be adequately accounted for in the data collection process. “Any matters concerning invisible disabilities or disabilities in general remain overlooked. Without a specialised census focused on data collection for individuals on the spectrum or those with invisible disabilities, they'll never be important enough for the government. So why do you see today blind association or the blinds in the country have the most solid presence?” asks the autism activist Mugdha. Indeed, the visibility of blindness makes it impossible to conceal, and since individuals who are blind typically do not have cognitive impairments and are functional, they tend to receive the most support. Similarly, those who use wheelchairs often receive significant assistance. However, individuals with invisible disabilities face stigma and taboo, which complicates their access to support and understanding. The issue primarily lies in the lack of acceptance, remarks Mugdha. “Parents often hesitate to openly acknowledge that their child has an invisible disability. Consequently, accurate statistics on the prevalence of these disabilities are lacking. Without this data, the government may perceive this demographic as a small and insignificant group.” When disabilities are approached collectively, progress tends to be limited. However, when specific conditions like autism are individually addressed, significant strides can be made. It's essential to recognise the prevalence of various special needs children across the country and have accurate data to inform decisions regarding school placements and government support. Without precise numbers, appropriate interventions become challenging to implement. This highlights a significant gap in addressing discrimination, particularly between visible and invisible disabilities.Also Read: Catch autism early: Key steps for early intervention Obtaining UDID remains a complex taskDespite the government setting in place certain policies to address the needs of autistic children, it takes a lot of time and harassment to get the benefit of those policies, shares Mugdha. For example, obtaining her son's disability certification required 14 sessions spanning over three and a half months. While some may consider this relatively quick, it's worth noting that it typically involves a longer process. “Now, just imagine taking your specially-abled child to a government hospital, which may not have public bathrooms, which, in the same room is also, evaluating your son along with inmates of your local jail. You are made to wait in lines for two to three hours for 14 different sessions and you are not even based in Bombay,” Mugdha sheds light on the plight of parents and children who have to come from far off to obtain a UDID card. Also Read: How bureaucracy is failing the applicants of Unique Disability ID While the disability certificate indeed provides benefits such as access to writers or readers during examinations, additional time and permission to use a calculator, obtaining it is far from straightforward in our country. Mugdha and Madhav’s journeyWhen Madhav was diagnosed with autism, Mugdha was completely unaware of the developmental condition. It took her about three to four years to grasp the concept of autism and truly understand the needs of her differently-abled son. “Our journey began in Bangalore, which proved to be excellent in terms of therapy options. Following this, we relocated to Bombay, where his academic intervention began.” While Madhav began to make progress in academics, it was albeit slow. Regarding schools, Mugdha has exclusively turned to special needs schools to support her child, as mainstream schools, even those claiming to be inclusive or integrated, often lack the resources to adequately meet the needs of autistic children. Instead, the family embarked on a journey focused on special needs education and enrolled him in specialised schools. Now, at the age of 14, Madhav continues to attend a special needs school and is passionate about fitness and is progressing at his own pace, focusing on functional academics. Mugdha’s career as a broadcast journalist has been instrumental in her efforts to create acceptance around neurodivergent children. Apart from raising awareness, Mugdha actively engages with parents of children with intellectual disabilities, equipping them with valuable tools to support their special needs. On raising a child with a developmental difference, Mugdha opines that the initial difficulties are always there till you do not fully accept the fact that you have a differently abled child who perhaps is not neurotypical. Once that acceptance takes shape, you are ready to embrace the new life as new avenues open up. “I've been very open with my friends and my family and my neighbours and my collegiate society about the fact that my son is autistic and that he has different needs and that he is going to occupy his deserving space in the world,” says Mugdha who is indifferent to the opinions hurled at her. She concludes by saying: In India, everyone will have an opinion on your parenting style. Everyone will have an opinion on why in the first place you have a special needs child. So the only way to deal with it is to accept that your child is autistic and raise them by prioritising their needs and at all times being prepared to give back answers when tough questions are put to you and fighting for your child's rights! Also Read: Our expert answers some common questions about Autism
13 May,2024 11:06 AM IST | Mumbai | Ainie Rizvi
Geetha VM’s son Om, was 10 when he was diagnosed with pneumonia in February 2020. To avail medical treatment, the Bengaluru boy was hospitalised and his family was promised insurance coverage by Care Health (formerly Religare) Insurance company. However, later they were denied health cover on account of Om’s autistic condition, which the parents were not aware and hence did not reveal at the time of purchasing the policy. Shortly after Om was admitted, a representative from the insurance company arrived at the hospital, demanding Geetha sign a declaration that Om has Autism Spectrum Disorder (ASD) and specify the age at which he was diagnosed. In an interaction with Midday, Geetha tells us: “When we bought the insurance policy, Om had developmental delay, and autism wasn't diagnosed by the government doctors. The health experts claimed that he only had developmental delays with academic and learning difficulties. Moreover, when you buy insurance, the agents usually check for underlying conditions like thyroid, cancer, and those kinds of pre-existing illnesses.” She continues, “In our case, they never highlighted or checked with us whether Om had intellectual disabilities or any such condition within the family. So, we took it for granted and didn't read all the rules.” What followed was an email from the insurance company stating that Om's policy 'was subject to cancellation due to non-disclosure of material facts regarding pre-existing ailments.’ Upon learning this, Geetha and her husband were taken aback. They didn’t expect that the medical cover for pneumonia would be declined owing to his underlying developmental delay/autistic condition which was not revealed. After several emails pointing out that Om’s ASD had no bearing on his physical illness, the family was met with disappointment. They had to pay all the treatment bills with the help of Om's husband's company corporate insurance. While Geetha believes it’s her fault for not disclosing that Om is under ASD, the question remains – why are insurance companies denying health coverage for people with intellectual and developmental disabilities? Also Read: A guide to navigating social relationships for individuals with bipolar disorder What does the law state? Autism and Down's Syndrome fall under the category of intellectual disabilities as per the Rights of Persons with Disabilities Act, 2016. This Act obligates the central and state governments to design schemes ensuring inclusive insurance coverage for persons with disabilities. The Niramaya Health Insurance Scheme, under the National Trust Act, 1999, stands as the only government program offering comprehensive health cover for individuals with intellectual disabilities. This scheme grants an annual reimbursement-only insurance cover of up to Rs 1 lakh, which includes hospitalisation, outpatient department fees, ongoing therapies and transportation costs for those with valid disability certificates. However, as per Geetha, insurance companies breach these regulations by refusing coverage or denying claims of individuals living with these conditions. “I did my research and spoke to senior parents of autistic children. They told me that companies don’t provide cover when you mention autism. You have to be secretive and discreet to avail health insurance for children diagnosed with autism,” shares Geetha. Her anger is in place. When the Insurance Regulatory and Development Authority of India (IRDAI) has clearly stated that intellectual disabilities, including autism, down’s syndrome and other intellectual disabilities or neurodivergence should be mandatorily covered, why are insurance companies denying the claim? “There may not be enough data or clinical experience of long-term risks to design the product appropriately,” wrote a senior manager of Care Health Insurance to Geetha. The manager insisted that despite IRDAI mandating health cover, we don’t have to give you a policy necessarily. He added, “If we provide a policy but then prevent you from making claims, you could file a lawsuit against us. However, we haven't issued a policy to you, and we're unable to do so.” Though Geetha had, later, provided them with his disability certificate which indicated he has a mild to moderate Autism Spectrum Disorder. Geetha tried her level best to convince the manager. She also suggested that a panel of doctors can speak to the underwriting team stating that autism is not an illness or a disease, but it's more like a a lifelong neurological condition and doesn’t impact the physical condition of a person. To her apathy, the insurance company denied all her requests. Also Read: Bipolar disorder advocates demand action for improved mental health care If Covid-19 can be covered, why not autism? Currently, Geetha is on a mission to expose the inefficiencies of the system. “I've been reaching out to numerous insurance companies, and I've even asked many parents to do the same for research purposes, almost like cold calling. Initially, these companies promise attractive premiums, covering amounts like 1 crore or 50 lakh for the entire family. They send us detailed emails with all the information. However, as soon as we disclose that only our son has Autism Spectrum Disorder, things take a different turn.” “The representatives handling our inquiries often lack sufficient knowledge. They quickly classify it as an "Intellectual Disability" and state that it cannot be covered. When we press them for more information, they struggle to provide satisfactory answers due to their limited understanding. Even when we escalate the issue to their managers, we're met with a similar response. They claim that their underwriters are still researching and trying to figure things out.” When the unheard viral illness, Covid-19 made an outbreak, insurance companies saw it as a lucrative opportunity to devise timely products. Despite the ambiguity and rapidly evolving situation, insurance agents promptly decided to include Covid-19 coverage overnight without knowing if Covid-related expenses would amount to 1 lakh, 2 lakh, or even 6 lakh. Geetha’s frustration stems from this swift action to cover Covid-19, an unfamiliar and terrifying phenomenon. While today Covid-19 is well understood and accepted as a part of our lives, back then, it was an unprecedented threat affecting the entire globe. Nevertheless, insurance companies readily embraced the need to cover it, recognising its importance for the well-being of the entire population. No space for disability Here is a minority group, persistently seeking answers for years, yet receiving no response. Is it because of prejudice towards individuals with disabilities or an indifferent mindset? Disabled children don't have the power to vote—does their absence from the voting demographic render their needs insignificant? However, Geetha hesitates to solely blame politicians, as the government, through the IRDAI, has unequivocally directed insurance companies to provide coverage. Although there are a few insurance companies, like Star Health Insurance, that offer coverage, the amount they provide is paltry—just Rs 3 lakh. This amount proves insufficient, especially when considering medical expenses for conditions like pneumonia, which necessitates hospitalisation for a mere 48 hours. Even for such a short duration, the medical bill can range from Rs 40,000 to Rs 60,000, considering inflated medical costs and other expenses. This inadequacy is glaringly evident and leaves much to be desired in terms of support for individuals with disabilities. Also Read: Lok Sabha elections 2024: Even in MVA, ticket for a Muslim a distant dream Furthermore, their coverage only extends up to 25 years of age. When Geetha inquired with her health insurance provider about extending coverage for her son, she learnt that they will not cover up beyond the age of 25. However, Care Health Insurance reached out to her with an alternative policy. “At that time, my son was only 12 years old, and I expressed concerns about what would happen if he encountered health issues before reaching 18, even common ailments. To this, they reiterated that coverage would only commence after he turns 18, and even then, it would be limited to Rs 5 lakh. Additionally, they required me to pay a significantly higher premium, almost double the standard rate, for this extended coverage,” Geetha tells Midday. Similarly, there are a few insurance companies—just a handful—that offer very low coverage. Some individuals are forced to pay high premiums for this limited coverage, which is completely unjust. Geetha opines that it's simply not right to exclude a significant portion of the population like this. Take the case of pneumonia, for instance. Anyone can fall ill with pneumonia; it's not something that discriminates based on age or any other factor. What frustrates Geetha even more is that there are insurance covers for things like pet animals, houses and cars, but why not for human beings? Why are insurance companies denying coverage to a significant portion of the population? This discrepancy is concerning and highlights the need for greater inclusivity in insurance coverage. What’s next for Om? People with Autism Spectrum Disorder are normal individuals and citizens of India, deserving of equal rights and access to essential services like health insurance. As a parent and advocate, Geetha is raising her voice to demand inclusivity and justice for our children. Geetha’s resilience knows no bounds. She has taken to social media to raise awareness on the institutional inefficiencies when it comes to health cover for children with special needs. “It has to go to the insurance companies, the IRDA, to the right people for it to click. And it's just been 2-3 days since I started this whole thing, maximum 48 hours.” For Geetha, the goal isn't about going viral and amassing 1000+ views. Even if it's just three views, the content must reach the right target audience, namely the decision-makers within insurance companies. It sheds light on the burning negligence when it comes to covering children with developmental conditions and serves as a stark reminder for the IRDAI to question insurance companies about their failure to adhere to the regulations. To conclude, Geetha adds, “I am appealing to insurance companies and the public alike: my son, along with countless others on the autism spectrum, deserves proper health insurance coverage. We are willing to pay premiums for fair coverage that reflects their needs and ensures their well-being.”
13 May,2024 10:59 AM IST | Mumbai | Ainie Rizvi
A prickly itch in your naughty bits, especially in public places, makes for an extremely uncomfortable and embarrassing situation. The constant urge to scratch your private parts is an indication of you not taking your intimate hygiene seriously and that you might just be suffering from skin infections in your private areas. Such infections in intimate areas are exacerbated during hot and humid summers. With the mercury hitting 40 degrees Celcius, ensuring optimal intimate hygiene is paramount. Although regular baths and the use of talcum powders might be a summer routine for most of us to keep infections at bay, taking care of private parts requires much more than just that. We contacted experts to get you a complete guide on how to keep those nasty red rashes and wet disgusting infections from coming at you. Dr Rohan Palshetkar, head of Unit Bloom IVF, professor, department of OBGY, DY Patil School of Medicine tells Mid-day.com that infections of the intimate areas are common in summer. “Sweating in the genital area can create a warm, moist environment that promotes the growth of bacteria and yeast, leading to infections. Further, dehydration can cause vaginal dryness, making it easier for bacteria to enter the vagina and cause infections,” says Palshetkar. Also Read: How social media addiction has given rise to popcorn brain in young adults Dr Shefali Trasi Nerurkar, consultant dermatologist, Dr Trasi clinic and La Piel skin clinic adds, “Lack of personal hygiene and improper clothing also make the patients more prone to these infections.” Further, Dr Trishna Gupte, clinical cosmetologist and trichologist, founder, The Cosmo-Square clinic, ISCA also highlights, “Excessive sun exposure on intimate skin can lead to sunburn, skin cancer, and premature ageing. The fragile skin in intimate locations of the body is frequently more sensitive to harm than other sections of the body. Hence ensuring proper hygiene is extremely crucial.” Which infections of intimate areas are common in summer? Palshetkar: Heat, sweat, and dehydration can make your intimate areas prone to several issues such as: Yeast infections: They are a common side effect of summer on the vagina. The hot and humid weather can create an ideal environment for yeast to thrive, leading to vaginal itching, burning, and discharge. It presents with a white curdy discharge from the vagina or penis and is treated with anti-fungal medications. Bacterial vaginosis: It is a condition caused by an imbalance of bacteria in the vagina. Symptoms of bacterial vaginosis include vaginal discharge, itching, and a foul odour. It presents with a foul-smelling, greenish discharge. It is commonly seen in women and treated with oral antibiotics. Urinary tract infections (UTIs): UTIs are more common in the summer due to dehydration and sweating, which can irritate the urinary tract and lead to an infection. Patients usually complain of a burning sensation while passing urine. The treatment provided is hydration and antibiotics. Taenia: Constant moisture due to sweat can give rise to wetness that causes superficial skin infections like taenia. Some also have extremely dry skin that can become dryer in summer due to dehydration or a lack of hormones, particularly for those in the peri-menopausal age group. Patients usually complain of dry itchy skin with patches. Intertrigo: It is a condition of the skin in the stomach fold, groin and under the breasts. It causes rash which is sore and itchy. It happens when areas of moist skin rub together. Bacteria and yeast can grow in this environment, leading to an infection. Intertrigo looks like a red, raw rash on the skin. It may feel sore or itchy, and it can sometimes ooze. It can develop in any fold of the skin. The most commonly affected areas of the body include the neck, under the breasts, the abdomen, the groin, the back, the upper leg, behind the knees, between the buttocks, in the webs of the fingers, and in the webs of the toes. Intertrigo may develop in one or more of these places Also Read: Vital organ damage to death: Mumbai doctors share tips to protect yourself from heatstroke in summer Gupte: Other infections common in men include: Jock itch: Symptoms include redness, itching, and a rash in the groin area. Treatment involves antifungal creams with a recovery time of one to two weeks. Balantis: Symptoms include redness, swelling, and pain on the head of the penis. Treatment involves antifungal or antibiotic creams with a recovery time of one to two weeks. Prostatitis: Symptoms include pain in the pelvic area and difficulty urinating. Treatment includes antibiotics with a recovery time of two to six weeks. What kind of risk does exposure to direct sun hold for intimate areas? Gupte: Excessive sun exposure on intimate skin can lead to sunburn, skin cancer, and premature ageing. The fragile skin in these locations is frequently more sensitive to harsh sunlight than other parts of the body. Seek shelter during peak solar hours – which are usually between 10 am and 4. Wear protective gear, such as lightweight and breathable fabrics that cover the skin. How should women maintain intimate hygiene in summer? Nerurkar: Women can do the following to ensure proper hygiene in intimate areas: 1. Take cold or lukewarm water baths regularly. 2. Use intimate cleansers for washing intimate areas. These cleansers are pH skin-friendly and anti-septic. 3. Always use anti-fungal or cooling dusting powders to help absorb the skin's sweat and keep that area dry. 4. Change underwear regularly, especially if you sweat excessively. 5. Drink lots of water and consume cooler foods to keep the body’s temperature cool. 6. Don’t share clothes and towels with other family members. 7. Since swimming is a preferred hobby in summer, ensure you take a shower after you take a swim. Gupte: Additionally, practise excellent wiping practices by wiping from front to back after using the restroom to prevent the spread of bacteria. Avoid douching or using harsh soaps and scents in the vaginal area as these can alter the natural pH balance and cause infections. How should men maintain intimate hygiene in summer?Nerurkar: Men too should follow more or less the same tips but some additional hygiene care involves: 1. Use loose boxers or shorts at home to allow easy breathing of groin skin. 2. Shave the hair from intimate areas for better hygiene. What kind of undergarments must men and women wear during the hot season? Palshetkar: Unless you are looking to dazzle, stick to breathable fabrics as they’re less likely to irritate and cause yeast and bacterial infection. Cotton prevents sweating to a great extent and thus is the right fabric to opt for. Gupte: Tight underwear should be avoided since it might increase heat and moisture in the groin area. Instead, boxer briefs made of moisture-wicking fabric are advised. Lightweight materials such as cotton are recommended because they allow for improved airflow and sweat absorption, keeping the body cool and dry Finally, choosing undergarments that prioritise breathability, moisture management and comfort will help men keep cool and comfortable during the summer. Also Read: Greasy and itchy skin in summer? Here is an easy guide for healthy skin during the hot season Which skincare products must be used to prevent infections in the intimate areas? Gupte: Women can use intimate washes with gentle ingredients like aloe vera to maintain pH balance. Men can opt for talc-free powders to keep the groin area dry and prevent chafing. Palshetkar: In case of itching and rash please visit a dermatologist, gynaecologist, or urologist. Suggest some easy home remedies for such infections Gupte: For summer-related skin issues, aloe vera gel can soothe irritated skin, and wearing breathable fabrics can help maintain dryness in intimate areas. Nerurkar: Drink lots of water and eat fresh fruits and salads to keep the body and skin cool. What common mistakes should be avoided in case of an infection in a private part? Nerurkar: Avoid wearing synthetic clothes and innerwear. It leads to a moist environment in the intimate area. Do not wear tight clothing. Strictly keep the groin region dry. Wipe the intimate areas with cloth or tissues and keep the area dry. Gupte: One common error is failing to use sunscreen, which results in sunburn and skin damage. Another mistake is over-washing your face, which can remove natural oils and alter the skin's moisture balance. Also, both genders should avoid using heavy, oil-based moisturisers in the summer, since they can clog pores and worsen sweat-related outbreaks. Disclaimer: This information does not replace professional medical advice. Consult a qualified specialist or your physician for personalised guidance.
13 May,2024 10:35 AM IST | Mumbai | Aakanksha AhireAnaemia is a very common yet preventable threat among girls and women in India, said health experts on Sunday. A deficiency of healthy red blood cells or haemoglobin needed to carry oxygen to the body's tissues raises the risk of anaemia. The condition is more common among women and girls. Lack of a proper iron-rich diet, particularly among women in their reproductive age can result in tiredness, weakness, and shortness of breath, the experts noted. According to the National Family Health Survey 5 (NFHS-5, 2019-21), 25 per cent of men (aged 15-49 years) and 57 per cent of women (aged 15-49 years) suffer from anaemia. "Anaemia is a very common and another rampant problem in Indian ladies, especially, due to intake of a diet low in iron and sometimes, it is genetically determined also. A vegetarian diet is quite low in iron and hence, supplements are necessary,” Dr M. Wali, Senior Consultant, Department of Medicine, Sir Ganga Ram Hospital said. "Pregnancy increases the requirement of iron and also lactation, so these two conditions are particular to the females," he added. The doctor further noted that anaemia is prevalent in both rural and urban women in India. "Most Indian urban women who are dieting to reduce weight become deficient and rural women because of hard work, increased requirements, increased loss of the menstrual blood due to infection or otherwise repeated childbirth, so all these causes lead to lack of blood or anaemia," Dr Wali said. The NFHS- data shows that anaemia is also highly prevalent among young adolescent boys (31 per cent), and adolescent girls (59 per cent) aged between 15 and 19 years, as well as in pregnant women (52.2 per cent) between 15 and 49 years, and also in small children (67 per cent) aged between 6 months and below 5 years. Common indicators of anaemia include fatigue, pale complexion, breathlessness, dizziness, and cold extremities. "Anaemia poses a significant health challenge in India, especially for women as they are more prone to lower haemoglobin levels owing to their distinct physiological requirements, including menstrual and pregnancy-related blood loss," Dr Rahul Bhargava, Principal Director & Chief BMT, Fortis Memorial Research Institute, Gurugram, told IANS. Importantly, the health experts pointed out that the condition progresses slowly and discreetly, and is difficult to detect. The symptoms also tend to appear late. They advised eating foods rich in iron or taking supplements. "Anaemia is very difficult to detect, most of the time it is slowly developing. Symptoms like breathlessness (an important symptom), chest pain (sometimes mistaken as heart pain), difficulty in pregnancy, palpitation, headache, and easy fatigability appear very late," Dr Wali said. "Many women quietly battle anaemia -- a preventable threat in India. By promoting a balanced diet rich in iron, advocating for accessible iron supplements available through government systems, and emphasising regular screening, we can empower women to combat anaemia and embrace healthier lives together," Dr Ameet Babre, National Programme Manager at Nutrition International, told IANS. The most effective preventive measures against anaemia involve adopting an iron-rich diet, which includes lean meats, poultry, fish, legumes, tofu, leafy greens like spinach and kale, fortified cereals, and nuts, Dr Bhargava said. Fruits like guava, banana, figs, and pomegranate may also help combat anaemia. This story has been sourced from a third party syndicated feed, agencies. Mid-day accepts no responsibility or liability for its dependability, trustworthiness, reliability and data of the text. Mid-day management/mid-day.com reserves the sole right to alter, delete or remove (without notice) the content in its absolute discretion for any reason whatsoever.
12 May,2024 08:08 PM IST | New Delhi | IANSThe world's first patient with a transplanted pig kidney has died almost two months after the operation. In March, Massachusetts General Hospital transplanted the genetically-edited pig kidney into Rick Slayman, a 62-year-old man living with end-stage kidney disease. The operation was a milestone in xenotransplantation, the transplantation of organs or tissues from one species to another -- as a potential solution to the worldwide organ shortage, the hospital said at the time. Slayman's death was not linked to the transplant, the hospital said on Saturday. "Our family is deeply saddened about the sudden passing of our beloved Rick but take great comfort knowing he inspired so many," his family said. Slayman's family paid tribute to the medical team that cared for him. "Their enormous efforts leading to the xenotransplant gave our family seven more weeks with Rick, and our memories made during that time will remain in our minds and hearts." The kidney came from a pig that was genetically edited to remove harmful pig genes and add certain human genes to improve its compatibility with humans. Scientists also inactivated porcine endogenous retroviruses in the pig donor to eliminate any risk of infection in humans. The hospital said it was "deeply saddened" by Slayman's death. "We have no indication that it was the result of his recent transplant," it said. "Mr Slayman will forever be seen as a beacon of hope to countless transplant patients worldwide, and we are deeply grateful for his trust and willingness to advance the field of xenotransplantation." This story has been sourced from a third party syndicated feed, agencies. Mid-day accepts no responsibility or liability for its dependability, trustworthiness, reliability and data of the text. Mid-day management/mid-day.com reserves the sole right to alter, delete or remove (without notice) the content in its absolute discretion for any reason whatsoever.
12 May,2024 03:39 PM IST | New York | IANSWhile parenthood comes as a blessing for many, for more than 20 per cent of mothers, the new chapter of life creates stress, anxiety and postpartum depression, which can turn fatal for both the mother and child, without adequate support, said doctors on Mother’s Day on Sunday. Mother’s Day is celebrated every year on the second Sunday of May. Postpartum depression is common but a treatable medical condition that many women face after childbirth. While the exact cause can be difficult to identify, several factors contribute to these feelings of sadness, anxiety, and tiredness. These can result from genetics, hormonal changes, sleep deprivation, fatigue, or the pressure of becoming a mother. The overall pooled estimate of the prevalence of postpartum depression was 22 per cent reporting postpartum depression within two weeks of delivery. “The journey to parenthood presents couples with a myriad of challenges, often impacting their emotional well-being profoundly. The complexities surrounding late pregnancies, assisted conception methods like IVF, and the burden of preterm deliveries weigh heavily on maternal mental health,” Dr Saurabh Mehrotra, Associate Director, Psychiatry, Institute of Neurosciences, Medanta, Gurugram, told IANS. Studies reveal that maternal mental illness during pregnancy correlates with adverse outcomes for both mother and child, including preterm delivery and poor neurodevelopment. “At Medanta, we witness approximately 70-80 per cent of mothers having post-partum blues out of which 20 per cent of mothers with postpartum depression grapple with such mental health challenges, emphasising the critical need for comprehensive emotional support and holistic care throughout the perinatal period,” Dr Saurabh said. The symptoms of postpartum depression include insomnia, loss of appetite, intense irritability, and even difficulty bonding with the baby. For mothers facing the postpartum blues, asking for help may be one of the most crucial steps, as it may help them easily bond with the baby, the experts said. But, “if left untreated, the condition can last several months or longer,” Dr Teji Dawane, Senior Consultant, Obstetrician and Gynaecologist, Motherhood Hospitals, Whitefield, Bengaluru, told IANS. “One of the first steps in addressing postpartum depression is early detection through screenings during prenatal and postnatal care and giving importance to emotional well-being. It is also encouraged to seek help from professional support services such as counselling and therapy,” Dr Teji said. Sometimes, treatment options also include medication like antidepressants to manage symptoms effectively. It is equally important to create a supportive family environment and develop self-care practices for new parents, the experts noted This story has been sourced from a third party syndicated feed, agencies. Mid-day accepts no responsibility or liability for its dependability, trustworthiness, reliability and data of the text. Mid-day management/mid-day.com reserves the sole right to alter, delete or remove (without notice) the content in its absolute discretion for any reason whatsoever.
12 May,2024 03:32 PM IST | New Delhi | IANSPreventive health check-ups allow timely detection of various diseases and conditions, leading to prompt treatment outcomes and quick recovery. "A large number of people in the age group 20-65 fail to take care of themselves due to erratic schedules, long working hours, sedentary lifestyles, and juggling between household and professional life. In such cases, people tend to suffer from chronic heart diseases, mental health issues, diabetes, high blood pressure, kidney, liver, and thyroid problems, and hormonal imbalances. Opting for timely diagnosis and screening can help to detect any disease early so that one can get appropriate treatment,” says Dr Rajesh Bendre, national technical head and chief pathologist, Apollo Diagnostics, Kolkata. Preventive health check-ups help in quick response to diseases at an early stage by allowing successful treatment. How often one needs medical assistance and check-ups will be based on one’s age, family history, and other lifestyle choices. On consulting the doctor at the right time, it is possible to catch changes in the patient’s body and detect health conditions without any further difficulties. Also Read: Doctors urge consideration of homoeopathic treatments for chronic and lifestyle diseases, here’s why Benefits of preventive health check-ups “By accessing the correct health services, screenings, and treatment, one should take that vital step in protecting his/her health. Remember that one having a family history of various diseases will also require preventive health check-ups to know his/her health status. Even those who are healthy should undergo preventive health check-ups to improve longevity and quality of life further,” says Bendre. By going for regular check-ups, one can easily avail of healthcare services. Proper detection of potentially fatal health conditions or diseases at an early stage lowers the chances of undergoing surgeries and chronic medical conditions which can result in higher mortality and morbidity rates in the patients. Higher rates of treatment and cure. Regular check-ups help experts diagnose disease early, leading to a good prognosis of the condition of the patient. If one diligently goes for a routine check-up of high blood pressure, high blood sugar, and cholesterol, they will know how likely they are to develop diabetes or cholesterol that often stands a risk of heart attacks or strokes. Preventive health check-ups help to avoid costly medical services that can cause distress to the patient. These check-ups also reduce the burden on the healthcare system. By opting for preventive health check-ups, one can get thorough knowledge and understanding when it comes to any new medical information or technologies that are available in the country. Preventive health check-ups encourage a healthy lifestyle in patients by aiding in active involvement in healthcare. Knowing that you are fit and fine will help with peace of mind when you opt for preventive check-ups and understand your improved overall well-being. Also Read: How social media addiction has given rise to popcorn brain in young adults Preventive health check-ups based on the age groupAccording to Bendre, Infants and children aged 0-10 years will require auscultation which is a method to listen to the sounds of the heart, lungs, arteries, and abdomen followed by palpation, newborn jaundice, and eye test. Adolescents aged 11-19 years need to be monitored for obesity, diabetes, anaemia, hepatitis b, tuberculosis, and high cholesterol and seek timely intervention. Adults aged 20- 40 years will have to monitor their blood pressure, blood sugar levels, and cholesterol levels from time to time as suggested by the doctor. Other vitals tests and screening include Liquid Profile, Pelvic exam and pap smear (women), Hepatitis C, Testicular Examination (men), Eye Examination, Dental exam, Skin self-exam for skin cancer, cardiac screening, thyroid tests, complete blood count (CBC), lipid profile test, breast self-examination and mammograms for women, vitamin D and B12 tests, colonoscopy for colon cancer and HPV screening for cervical cancer. Those above 40 will need cholesterol, cardiac, heart, cancer, infectious disease, and osteoporosis screening along with bone mineral density tests (women). It will be imperative for this age group to take charge of their health and schedule regular visits to the doctor. For adults above 60, prostate cancer and colorectal cancer screening, hearing tests, vision tests, Aneurysms, and Immunisations are recommended to stay healthy and hearty and avoid any health problems. Furthermore, one will have to know their family history and opt for preventive check-ups accordingly. Preventive health check-ups can be done annually, 6-monthly, or as recommended by the expert. By aggressively participating in preventive health check-ups, people can take hands-on steps when it comes to maintaining their health and well-being. It not only is beneficial for the early detection of diseases but will also help with required lifestyle changes, resulting in a healthier life. Also Read: ‘Drafting a living will safeguards your right to live and die with dignity’ Disclaimer: This information does not replace professional medical advice. Consult a qualified specialist or your physician for personalised guidance.
12 May,2024 02:09 PM IST | Mumbai | mid-day online correspondentIn a remarkable medical feat, a team of specialists led by Dr Mazda Turel, neurosurgeon at Wockhardt Hospital and ENT Specialist Dr Nipah, achieved a ground-breaking success in treating a highly unusual case of sinonasal malignancy. This extraordinary case, which involved a 30-year-old male patient Mr Sachin Kesharwani, showcased the power of collaboration and innovation in modern medicine. The patient initially presented with persistent headaches, nosebleeds, and bulging eyes—a distressing combination of symptoms that signalled a severe underlying condition. An MRI revealed a tumour nestled within the nasal cavity, eroding the base of the skull and infiltrating the brain, leading to the displacement of orbital structures and causing the patient's eyes to protrude. Dr. Turel and his multidisciplinary team, including ENT specialist Dr. Nipah, embarked on a comprehensive treatment strategy. The procedure was complex and extensive, requiring meticulous planning and execution. Dr. Nipah skillfully excised the tumor from the nasal cavity, while Dr. Turel performed a delicate cranial surgery to remove the tumor extension into the brain. Further mentioning the details of the surgery, Dr Turel said, “One of the most critical aspects of the surgery was the meticulous repair of the skull base. We utilised a combination of autologous tissue from the patient's thigh, along with synthetic materials, to seal the defect and prevent cerebrospinal fluid leakage—a potential complication that could lead to severe infections.” However, on the success of this critical surgery, an elated Turel mentioned, “Following the successful surgery, the patient experienced a remarkable recovery. His debilitating headaches subsided, his vision improved, and the position of his eyes returned to normal, marking a significant milestone in his journey to recovery.” However, the joy of this success was tempered by the biopsy results, which revealed the tumor to be a highly malignant sinonasal carcinoma. Despite this setback, the patient's resilience and the unwavering commitment of the medical team remained steadfast. The subsequent course of treatment involved a rigorous regimen of chemotherapy and radiation therapy, aimed at targeting any remaining cancer cells and preventing recurrence. The patient endured numerous sessions of therapy, demonstrating immense courage and determination throughout his ordeal. Dr. Turel emphasized the rarity and complexity of this case, underscoring the unique challenges posed by the intricate connection between the nasal cavity and the brain. Despite the inherent risks, the successful outcome serves as a testament to the expertise and innovation within the medical community. This extraordinary case exemplifies the transformative potential of modern healthcare, where collaboration, cutting-edge technology, and unwavering determination converge to defy the odds and restore hope to those facing life-threatening illnesses.
11 May,2024 01:09 PM IST | Mumbai | mid-day online correspondent
Mumbai-based nurse Rashmi Sawant has been a nurse for 18 years now and has grown immensely in this time. However, she has seen that people still have misconceptions about the job. “In India, people think nursing is deemed as a low-level job,” she expresses, continuing, “I think people don’t understand the job hierarchy for nurses in India. People only think that we are a nurse, they don’t know we are registered nurses that also have different administrative positions.” If only they knew better, Sawant says, they would know it is a huge misconception because if you are consistent and credible, then there is a huge growth in the job. Every year, International Nurses Day is observed on May 12 around the world to mark the contributions that nurses make to society. While doctors are hailed for their medical genius, the contribution of nurses may often be relegated to the shadows of the hospital corridors. However, times are changing and one of the biggest examples in the recent past has been that of the Covid-19 pandemic. Even though all nurses dealt with patients, their families who were coming to terms with their death or sickness on a daily basis took out their frustration on them. At such times, nurses put on a brave front and do their best to give them hope and continue to do so even today and Sawant is only one of them. Need for more awarenessIncidentally, Sawant’s sister inspired her to become a nurse. She explains, “When I saw her studying and working, I instantly thought I could fit into this profession. She had no ideals and was the first one in the family. The main thing about being a nurse is growth. I joined as a staff nurse, and today I am a deputy chief nursing officer after 10 years.” It hasn’t always been smooth sailing because the 44-year-old says every position had its own challenges but that helped her build her professional efficacy over the years. “It is refreshing to have a profession that is female dominated,” she says while adding that there is a confidence among patients that female nurses are more efficient. “How people treat nurses depends on how you are,” Sawant adds. Even as she has reached a leadership role today, the Mumbaikar says there are many challenges that nurses face daily but not many people know about it. She explains, “The challenges are the emotional burden that we get while dealing with the patients, relatives, senior doctors and our seniors. It takes a lot to be calm and patient and go on. We have to always maintain a smile and show the confidence that everything is fine.” It came out most during the pandemic and it got really stressful too. “People were really scared to talk to each other. We nurses had to move the fear aside to help the people and make them recover from serious conditions. We have played a role in that and been by their bedside 24x7 because people didn’t want to come to the hospital,” adds the deputy chief at Gleneagles Hospital Mumbai, where she has been working for the last eight years.As more and more films and web series depict nurses as a part of the story, Sawant says she has seen them but is unhappy with the way they are depicted. “Nursing is a very advanced profession. We are into continuous training, education, audits, research – so many things. We have only been shown bedside, listening to the doctors and relatives. There needs to be more research in depicting them,” says the Mumbaikar. With several protests happening in the city and country from time to time, she believes nurses should be paid well monetarily, treated well and their talents need to be recognised.Also Read: Raj Kapoor, Lata Mangeshkar, Pandit Ravi Shankar: Mumbai's Gaylord reopens but carries a legacy with old-world charm and foodMaking a difference in people’s livesElsewhere in Mumbai, Dr Elizabeth Joseph, chief of nursing at Wockhardt Hospitals Mumbai Central, says even though dealing with patients is their daily job and may often be challenging, it is important for nurses to empathise with their patients, understand their needs, and provide comfort in times of vulnerability. “While the journey may be challenging, the rewards of touching lives and making a difference every day make it all worthwhile,” shares Joseph, who has been a nurse for three decades now. It has changed a lot from the time she first started out thirty years ago. “My journey in nursing began with a subtle nudge from a friend who had already embarked on this path. Back then, career choices might not have been as clear-cut as they are today. However, fate led me to pursue nursing, and I found myself enrolled at SNDT, one of the most esteemed universities for aspiring nurses. While I didn't initially feel a profound calling towards this profession, stepping into it ignited a flame of passion within me.” Once she got into the thick of things during her days as a nursing student, she couldn’t tell night and day. She reminisces, “My days were spent in the halls of the bustling municipal and general hospitals (in Mumbai), where the shortage of nurses was palpable. The workload was staggering, leaving little time for doctors and nurses to connect with patients on a personal level. Yet, it was during these clinical postings that I discovered the essence of nursing — the ability to make a difference in someone's life every single day. Whether it was through small gestures of kindness or attentive care, I realised the profound impact nurses have on their patients' well-being.” Even though nursing faces many different kinds of challenges that go beyond dealing with patients like attrition, which Joseph says has become a prominent issue, there is work to be done. One of the most important issues is ensuring patient safety amidst staffing shortages, which requires coordination and dedication behind the scenes. “From obtaining doctor's orders to coordinating medication delivery, every aspect of patient care demands meticulous attention to detail. It's crucial for people to recognise that while nurses are the primary caregivers directly interacting with patients, they also play a vital role in coordinating with various departments behind the scenes.” With nurses emerging as the frontline heroes during the pandemic, showcasing their crucial role in healthcare, the 58-year-old says there has been a heightened visibility that has led to a growing appreciation for their dedication and expertise. “As societal norms evolve towards greater equality, the nursing profession is rightfully gaining respect and recognition. However, there are still areas where progress is needed to ensure equitable opportunities and support for nurses,” she adds. Also Read: Why this Mumbaikar turned into a human indicator at Dadar stationChanging role of nurses todayOne of the easiest ways to do this, believes Lissymol Saji, nursing head at Wockhardt Hospitals Mira Road, is by raising awareness about the vital role of nurses in healthcare. In fact, it was what made her want to become a nurse. “I wanted to help people and make a difference in their lives. The best thing about being a nurse is the opportunity to provide compassionate care, and support to patients during challenging times,” she shares. Over the years, she has seen many different kinds of misconceptions play out in the hospital and outside of it. She explains, “One common misconception about nursing is that it’s all about following a doctor’s order. However, the reality is that nurses play a crucial role in patient care, often making independent decisions and advocating for their patients.” Even as they deal with these misconceptions, Saji agrees with Sawant as she says apart from emotional strain, nurses also face psychological strain as they regularly witness suffering,trauma and death, which disturb their mental state too like anybody else. “Nurses often work long shifts and sometimes without adequate breaks which can lead to physical exhaustion,” she adds. This may often escalate when dealing with family and friends of people in the hospital but her experience and training kicks in. “When dealing with stressed or angry family members, it’s important to remain calm, and empathetic, communicate effectively and listen to their concerns, provide information, and involve them in the care process by eliminating tension and building trust,” she explains. Just like Saji even Dr Sneha Vaidya, regional director-nursing services, Western Region Apollo Hospitals, believes that people think nurses are just assistants to doctors but they are so much more than that as they don't just do basic tasks anymore and in fact are from a growing pool of specialised nurses who provide advanced care to patients. With Vaidya, who has over 26 years of experience, saying the challenging part of being a nurse is also maintaining a work-life balance. “We need to work in shifts and manage family at the same time and that becomes stressful sometimes,” she explains. Interestingly, the nurse has a big role model in her life. “My mother inspired me to be a nurse who was one of the pioneering nurses in her times enduring compassion and care,which eventually developed the confidence in me to take up this arduous role. The best thing about being a nurse is you can touch millions of lives,” she explains. In all this time, Vaidya says things have changed a lot and nurses have gained a lot of respect among the other medical professionals. However, there is still more room for improvement. “The fact that a nurse is more than an assistant to the doctor needs to be furthermore accepted in some of the pockets in the country especially out of tier 1 and 2 cities,” she concludes.
11 May,2024 01:04 PM IST | Mumbai | Nascimento PintoFemale sex hormone oestrogen and the X chromosome play a significant role in making women more vulnerable to the autoimmune disorder lupus’, said experts on World Lupus Day on Friday. World Lupus Day is observed every year on May 10 to raise awareness of the life-changing autoimmune disease, in which the body attacks its organs by producing certain substances called antibodies. Symptoms predominantly include fever, fatigue, malar rashes, multiple large and small joint pains, breathlessness, sometimes difficulty in swallowing, and chest pain. The condition, also known as Systemic Lupus Erythematosus (SLE), affects millions of individuals worldwide. In India, 3.2 cases of SLE are documented per 100,000 people. However, globally women in the reproductive age range disproportionately account for up to 90 per cent of cases of the SLE. Also Read: EXCLUSIVE: ‘Longer the life of a food product, the sooner your expiry date: Revant Himatsingka aka Food Pharmer Despite recent progress in the understanding of lupus, the striking female-to-male ratio of disease incidence remains largely unexplained. “But some studies point out that sex hormones play a major role in causing genetically predisposed women more vulnerable to lupus; oestrogen specifically is likely to contribute more to the development of lupus,” Dr Anu Daber, Sr Consultant Rheumatology, Paras Health Gurugram, told IANS. Research also highlights the connection between X chromosomes in women and the development of lupus, meaning in females, having two active X chromosomes would overwhelm the cellular machinery. “To prevent this, one X chromosome is inactivated in each developing cell. This process, called X-chromosome inactivation, might influence how the immune system learns to identify threats. Variations in how efficiently this inactivation occurs could potentially lead the immune system to mistakenly target the body's own tissues, contributing to autoimmune diseases like lupus,” Dr Anu explained. Dr. Prasad Kuvalekar, Consultant Physician of Internal Medicine, DPU Super Specialty Hospital, Pimpri, Pune noted that lupus affects the skin, kidney, heart, brain joints, lungs, and blood vessels. Also Read: How social media addiction has given rise to popcorn brain in young adults “There are no vaccines available to prevent lupus as it's an autoimmune condition and most of the time it's genetic. There are also no preceding signs to identify its early onset,” Dr Prasad told IANS, noting that malar rashes can, to some extent, be identified as an early sign. Further, people with lupus are more susceptible to infection, cancer, and bone tissue death, since the disease and its therapies can impair the immune system. Lupus also raises complications in pregnancy problems. Dr. Prasad said that women who have lupus are more likely to miscarry. “Lupus raises the risk of high blood pressure during pregnancy and premature birth. To lessen the chance of severe consequences, doctors frequently advise deferring pregnancy until your disease has been controlled for at least six months,” he added. Physical activity may be key to managing the autoimmune disorder, and the associated problems as well as ease mental stress. “Women can include low-impact exercises in their routine like yoga, tai chi, pilates, walking, and swimming. Regular exercise has been shown to have a positive impact on mental health, reducing the risk of depression and anxiety, which are common comorbidities among individuals with SLE,” Dr Anu said. Also Read: Can this respiratory disease be cured with the latest medical advancements? This story has been sourced from a third party syndicated feed, agencies. Mid-day accepts no responsibility or liability for its dependability, trustworthiness, reliability and data of the text. Mid-day management/mid-day.com reserves the sole right to alter, delete or remove (without notice) the content in its absolute discretion for any reason whatsoever.
10 May,2024 03:07 PM IST | New Delhi | IANSInflammatory Bowel Disease (IBD) causes inflammation and irritation in the digestive system. If you have been diagnosed with inflammatory bowel disease (IBD), Dr Meghraj Ingle, director and senior consultant gastroenterology, Gleneagles Hospital, Parel, Mumbai shares effective tips to manage this condition and improve your quality of life. IBD includes two main types: Crohn’s disease and ulcerative colitis. Crohn's disease can affect any part of the digestive tract, right from the mouth to the anus, and can further cause inflammation and swelling in the particular affected area. Ulcerative colitis specifically affects the inner lining of the colon (large intestine) and rectum, which leads to inflammation and ulcers in the affected area. Genetics, family history, bacteria, viruses, smoking, infections, and antibiotics can lead to this condition. Symptoms of IBD include diarrhoea, fatigue, blood in your stool, and reduced appetite. These symptoms can vary from person to person depending on the severity of the inflammation. This condition can be managed by medication and surgery. Here are some tips to take care of IBD Avoid sugary products/drinks: It is advised to lower the consumption of sugary products like soda, sweets, chocolates, and juices as they can trigger your digestive system and gut health. Instead, opt for healthy options like water, coconut juice, and vegetable broth for health benefits. Follow a balanced diet: Eat a nutritious diet consisting of fresh fruits, vegetables, pulses, lentils, and legumes. Also, ensure your body gets enough proteins and fibres including healthy fats like omega-3 fatty acids. Take the help of an expert who will guide you regarding what to eat and avoid. Exercise regularly: It is important to exercise daily and stay fit to manage the symptoms of IBD such as bloating and fatigue. You can exercise for at least five days a week for 45 minutes. Do activities such as running, cycling, swimming, Pilates, gymming, or Zumba. Quit smoking: If you smoke, it is essential to quit smoking to manage IBD. Smoking not only increases the risk of developing IBD but also worsens the symptoms of this condition. Stop consuming alcohol and recreational drugs: Did you know beer can induce gas? Shockingly, alcohol causes bleeding in the gut when one has IBD. Furthermore, alcohol irritates and inflames its lining. It is better to avoid alcohol and improve your condition. De-stress by doing yoga and meditation: Stress can also trigger IBD symptoms. It is essential to opt for yoga or meditation to relax and calm down. Keep track of your symptoms and food triggers: Recording symptoms and food triggers can help manage inflammation. You will be able to understand which food can trigger the symptoms. Hence, one will be able to seek the right kind of guidance from the doctor. Disclaimer: This information does not replace professional medical advice. Consult a qualified specialist or your physician for personalised guidance.
10 May,2024 01:10 PM IST | Mumbai | mid-day online correspondentADVERTISEMENT
